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Our Trustees

Our Board of Trustees contribute their expertise, leadership and experience to the strategic direction and governance of the charity. 

Ultimately, their work changes lives, by utilising their specialisms, working with the businesses, NHS contacts and many more. We are very grateful for the commitment of our trustees who continue to support the charity in new and ambitious ways. 

Michael Fry

Michael has a son with NF1. He is a barrister specialising in planning, regulatory and public law, and used to be in the Army. He has experience of public affairs, media engagement and charity law. His particular areas of interest lie in developing advocacy and fundraising.

Dr Tim Corn

Tim qualified in medicine and went on to specialise in neuropsychiatry becoming Senior Lecturer at the Institute of Psychiatry.  He then joined the pharmaceutical industry and was responsible for the development of more than twenty new medicines for rare diseases. Tim’s work brings a broad understanding of the needs of people with rare conditions, and working with teams of different disciplines.

Prof. Rosalie Ferner

Professor at Guy’s and St. Thomas’ NHS Foundation Trust / IOPPN King’s College London. She was the 2016 recipient of the European Theodor Schwann award for contribution to Neurofibromatosis. She was London lead for NF2 from 2010-2014 and is the current national lead for the multidisciplinary Complex Neurofibromatosis 1 service.

Richard Goode

A businessman and specialist in property fund management, Richard is a fellow of the Royal Institution of Chartered Surveyors. For the last fifteen years, Richard has been the Managing Director of Fletcher King PLC and as a family man he and his wife happily brings support to the charity, as his son lives with Neurofibromatosis Type 1.

Stewart Lee

Stewart currently manages the Social Media Team at the National disability charity, Scope. Having previously worked at the Joseph Rowntree Foundation, a social policy think tank, Stewart is also a fellow of the Social School for Entrepreneurs. Stewart lives with Neurofibromatosis Type 2 and brings valuable digital communications and accessibility expertise to the charity.

Emily Owen

A published author since 2014, Emily has been an advocate of those with Nerve Tumours by relaying her own experience of living with Neurofibromatosis Type 2 in her memoir published in 2016. She has particular interest in developing communications with the supporters of the charity, and promoting the charity to outside bodies.