Helpline 07939 046 030

Dear Sir or Madam,

Please Shine your light on Nerve Tumours!

Many thanks,


Shine a Light on Nerve Tumours is a grassroots initiative that brings Neurofibromatosis awareness into the community by lighting up buildings, bridges and iconic landmarks in blue. 

Why request a landmark in your community light up?

Reasons to light up? Here are four!

  1. Help your city/town recognize neurofibromatosis in an official capacity

  2. Creates a newsworthy, local story for your local news outlets

  3. Establishes a place to meet others in your local NF community on the day of the lighting

  4. Tell local NF Hero stories to new audiences

Steps to request a landmark to “Shine A Light on Nerve Tumours”

1. Be flexible, and keep the request simple. 

“Hi, can I speak to the person in charge of your premises lighting? We'd like to ask your company to light up the building blue for charity?”

We have traditionally asked for two colours - the two globally recognised colours of Neurofibromatosis - blue and green. However, increasingly landmarks prefer to go with just one colour- in which case, ask for blue.

Sometimes they need a colour code called a “Pantone” or “Hex code”. This is below.


2. Once it's confirmed, tell everyone you can! 

So you've asked, and they've said okay! Fantastic. Tell EVERYONE! but also, tell Jay. He's heading up our end of the Shine A Light campaign.

“Hi Jay, Great news! my local landmark (insert landmark name) has agreed to light up blue for World NF Day!”

  1. Email us: let know how you've done. This way we will ensure that we at Nerve Tumours UK and our friends at CTF will update their webpages.

  2. Tag #NerveTumours and #EndNF in all your social media posts about it

  3. Plan a gathering for your friends, family and extended NF community at the location. Or, gather at a nearby spot where you have a view of the site (of course, be mindful about safety). It’s very powerful to meet like-minded families and view together!

  4. Tell the media! We will provide templates for a press release and a Letter to the Editor, plus best practices for conducting this outreach.

Any questions? Please contact  - you can contact him directly at the bottom of this page!

Press Release PDF

Contact Jay about Shine A Light On Nerve Tumours

Jay is our Awareness and Campaigns Coordinator. He is the man to talk to about Shine A Light on Nerve Tumours, and it is important to let him know about any buildings you bring on board!

Any fields with an * are mandatory