Latest News
and Events
Welcome to our Nerve Centre
Here you can stay up to date with the latest news and views from Nerve Tumours UK and across the nerve tumours community.
NF is the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN). We at Nerve Tumours UK are in the process of updating our medical publications and resources in print and digital to reflect the new names where relevant. This will however not be reflected in our news section and other non-medical publications digital and print.
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Everybody is born a Champion
NTUK & RBH's 3rd campaign features GB Paralympian Thomas Young, who has NF1, and celebrates those living with NF
Read MoreJo’s Shine A Light Family Fun Day
The family fundraiser was supported by Dr Shruti Garg, member of the Nerve Tumours UK Medical Advisory Board
Read MoreErin’s 24 hour charity live stream
Erin has NF1 and is raising awareness with a 24 hour live charity stream to Shine A Light on NF
Read MoreTate’s Shine A Light Bikeathon
Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!
Read MoreConnor’s NF2 story
Connor's mum Tracy's maternal instincts proved invaluable when fighting to get Connor's symptoms investigated
Read MoreAccess to your GP
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Read MoreLondon Marathon 2024 Team NTUK
Thank you and congratulations to Team NTUK for their marathon effort
Read MoreThomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
Read MoreMeet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
Read MoreWe are funded 100% by voluntary donations
So, we really need your support. There are lots of ways you can get involved to support us and the nerve tumours community.
See how you can get involved